i have come across a great site “livingwithfibro.com”. Great site to interact with others dealing with this chronic condition!
I have just started my path! I am still settling in and trying to get my body to settle! My symptoms are still out of control….medications and restrictions to my work day are hoping to provide much needed relief.
Having experienced other painful chronic conditions, I know that I am in for a battle. This one may truly top all that I have dealt with. Yet I know it will not break me.
The primary difference is that there is no cure for this condition. There is no surgical cure. There is only a dance….that dance made by the balance of pain with the medications and activity allowed.
Fibro and Polyarthralgia are permanent, chronic conditions. They are not fully understood by the medical community. I am thankful for my doctor! She has educated herself on these conditions!
I have no answers. I am seeking them myself! I am battling to gather more strength. I am battling to gain more control!
Yet I know that I will come to a point that I can manage! I will learn to better manage my symptoms….to better understand my conditions.
Yes….it hurts! Yes….it is extremely painful! We persevere through the pain…the burning….the spasms.
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Comments on: "Living with Fibro" (2)
Fibromyalgia is definitely a difficult chronic condition to live with. Your post reminded me that I haven’t yet written about my Fibromyalgia diagnosis on my own blog. I was diagnosed in 2005 when Drs were beginning to suspect that I had a complex disease. It was good to have a name to attach to some of the reasons for my joint and muscle pain at that time but I always felt something else was going on. I was diagnosed with Rheumatoid Arthritis 5 years later and I realised since then it is really hard to differentiate what condition is causing which issues. I’ve also realised that I have really put the Fibromyalgia diagnosis to the back of my mind. Partly that is because I had a theory ( no medical evidence of this that I know of) that Fibromyalgia may in fact be a forerunner to another autoimmune disease like RA or Lupus. Have you ever been tested for Rheumatoid Arthritis? I am negative for the RF factor but positive for anti CCP Antibodies which are specific for RA so if you have only had the RF blood test it may be worth asking your Dr to test for you Anti CCP AB’s. Just a thought. Thanks for your post, I will be reading about your Fibro journey with great interest and I really should include a post about Fibro on my blog….so thanks for the reminder too 🙂
Thank you! And I have had several blood tests to rule out RA and other degenerative muscle conditions. Have also had X-ray of hands. It is truly a lot to deal with. Like you I have had a lot of other conditions that took the forefront. So I really don’t know how long I have had this condition. It took taking care of everything else over the years for my brain to recognize that I still had pain.