One of the most important things for those of us with chronic pain/illness, is to remember “Patience”! Yes….I know….often easier said than done!
We must have patience with ourselves….with the health battle we are fighting….we must have patience for those around us….since our mental and emotional energy is usually maxed out due to our own internal struggle of dealing with just managing (or rather…negotiating) our day!
A great example for me was this morning! I had a powerful idea to write about….something I knew would help me as well as others to get out….to express……yet…..as soon as I got home….I could not remember! To have such a strong pull to write on a specific topic….have no way to make a note so that I could refer to it…..to intentionally repeat it to myself….a number of times…..then promptly forget as soon as I got home!
Well….at this point….I just had to smile…..and shrug! After all……it would do no good to get frustrated or angry…..I know that if I cannot make notes for myself or have my hubby or son help act as my “memory”…….there is a very good chance I will not remember.
I know this is part of my chronic condition……the wonderful “Fibro fog” as it is called…..magnified by the grief that I am still working through.
So as a good friend of mine who has Fibromyalgia suggested…..use notes….whether they be sticky pads….or on the phone…..whatever works! Write down the simplest thoughts! These have been a great tool and reference…
It has also gone a long way toward teaching me patience! Maybe this is one of the lessons that I was intended to learn! : )
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Patience…sometimes it is hard, especially when it comes to pain