I read an interesting article regarding Fibromyalgia and Chronic Fatigue Syndrome….the fact that these are life changing conditions….these greatly misunderstood chronic pain conditions are “for life”…..
In simple terms….the person we were before the diagnoses no longer exists….these conditions permanently determine our actions….in my case I have had to quit my job, relocate my family to a different state….all in the hope that in the long run….my symptoms will settle down to allow a simple life that is interrupted with occasional flares.
My hopes are simple….to be able to do a short walk….to be able to drive to the store…these will take time (I am prepared for the long haul)…..
Yet along this path…I have also lost my Baby Sis (as many of you who follow my blogs know)……so I am not only dealing with the grief of having lost my Sis and best friend…..I am grieving the loss of me! The me that used to be able to run….to hike….to drive….to take care of others….to fish….to hunt (yes…I have not given this up….just much more difficult as a Handicapped Hunter who must stay in the rig)…
This knowledge has really hit home! It has helped me to better understand another level to the stresses that my body is dealing with….the additional weight that is facilitating the continuation of the severity of my symptoms.
I hope that this “new” knowledge will help me to be more patient with myself…to better understand how to slow my world down so that I can come out the other side with limitations and less debilitation.