Spending time with our friends and loved ones is often a challenge for those of us dealing with chronic conditions/illnesses. Those closest to us most likely all ready know this…we are intimately aware of our limitations.
We had been invited this week to our neighbors’ church for a Christmas Party. I had really hoped we could attend and was optimistic that with a nap, I would be okay. However, it was not to be! That afternoon I dealt with the worst “blow out” (I have a permanent Colostomy), that left me feeling miserable….So the evening was spent quietly, playing some Uno to help distract from the nasty way my body was feeling.
Yesterday, we went for a day trip. The drive was beautiful! We went to Jackson, Wyoming. It was wonderful seeing all the animals! We were able to see mountain goats, big horn sheep, elk, moose, mule deer, white tailed deer, and coyotes.
Today? Well….as I am sure you can imagine….I am under my heated blanket….hurting….body extremely unhappy with me. LOL
I would not trade yesterday for anything! I know that at this point in time, spending time with my hubby and son can sometimes “cost” a great deal…..however, I consider it worth it.
I do not know how long it will take for my symptoms to calm enough to be considered “under control”…..or to at least be able to say that I am “maintaining”…..
I do know that I am looking at a long-term scenario….years more than likely to get to some type of “normalcy”…
I just cannot wait for my body….I spend most days resting and relaxing as much as I can…with gentle stretching (walking restricted to inside the house only at this point)….then outings when we can with our son (taking full advantage of my wheelchair).
One day all this pain….the frustration of being “trapped” in a once-friendly body….will be a memory. I will one day be able to have low-key activity….to rest to prepare for outings…to deal with “flare-ups” and not living with constant “flaring pain”….