Embracing life with chronic pain and illnesses.

Stoma Changes

The one impact of dealing with Fibromyalgia/Polyarthralgia/Chronic Pain Disorder and IBS that I was not prepared for was how it would affect my permanent Colostomy.

I had what the doctor’s referred to as the “perfect stoma”. Always had good color, circumference and height (about an inch above my skin).

The loss of muscle tone thanks to the extreme symptoms of my combination of conditions has taken its toll on all muscle groups….including my abdominals (which had been quite strong prior to initial Colostomy surgery in 2011).

During the past month or so I have noticed that my stoma is at skin height or just below! Not good! (This causes leakage….the barrier I must wear that adheres to the skin around the stoma does not sit tight against the skin when the stoma sinks in….causing output to get under the barrier….which can cause accidents.)

I was able to get a sample of a convex barrier (one that actually gently pushes the skin down forcing the stoma to stand up) that adhered very well to the skin while forcing the stoma to be up at the height it should be.

While I await the delivery of these new style supplies, I have to wear my support undies or my hernia belt that my husband had built for me….the only way to put pressure around the stoma so that the barrier will stay in place and limit leakage.

I still have to change barriers more often than I would like (sometimes 3 times or more a day)…..but the new supplies will make a world of difference! Thankfully they will be here in the next couple of days.

It never ceases to amaze me how our bodies continue to teach….and we must continue to listen and learn!

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