No matter our chronic condition/illness, our lives and the lives of those around us are forever altered. We are stressed to our breaking point. The emotional toll overwhelms. We are in the midst of the most intense storm of our life.
We are tested at what feels to be beyond our limits as we battle our way through the health care system, working with our doctors to find some sort of relief to allow us to have a life of some kind…our loved ones and those close to us witness this first hand.
We embark on a new journey that is dictated by our bodies…grieving who we were and had hoped to be. We struggle to adapt…to accept the fact that we might be home bound, unable to drive, barely able to maintain good hygiene…yet we do.
Like me, you might have to fight for SS Disability. Even with the assistance of an advocate/lawyer, this can be an arduous task. My route went through denials…to a hearing…taking 26 months to finally have the Judge rule in my favor. All the while, watching our resources dwindle to nothing.
I am thankful to be at this last step…awaiting the formal notification that will verify the monthly payment and solidify medical coverage. Yet I am bereft of emotion…feeling hollow, raw…an empty shell…praying for this wave to settle quickly…knowing that this journey is far from over.