Fibromyalgia, Polyarthralgia, Chronic Pain Disorder, Spastic Colon, permanent Colostomy, IBS, Gastritis, Sciatica, Neuralgia…these hidden conditions have radically changed my world. I have accepted and am learning to live within the boundaries of my Disability…which includes being primarily home bound and driving to town (15 miles) 2-5 times per month (with my son as escort). This journey from working full-time, hunting and fishing with my husband and son, never thinking twice before hopping in the car for a drive, playing outside with my son…has been very hard. Faith, family and friends have carried me to this day.
A few of my “new” rules…
Breathe Deeply –this is beyond just the act of breathing. For example, when I step out onto the back porch, my eye is drawn to the leaves dancing on the most gentle breeze…I pause to find my mind joining the dance…the breeze softly brushing against my skin…I am carried away for a moment…separated from my constant companion, Pain.
Play with Brain Fog –this means handling the forgetfulness, stopping mid-sentence, repeating sentences, using the wrong words, inability to retain or understand new concept, etc. with a smile! So far this is the hardest to implement. Perfect example, I walk in to the bathroom, hmmmm…I turn and begin to leave…smile…tell myself it’s okay…will remember soon! Repeat at least three times….then upon the 4th now labored trek, I smile as I reach for my toothbrush! Wohoo!! I did it!!! I brushed my teeth! FYI –many prayers have and will continue to be said at this time…including asking God to help me remember and to not be hard on myself.
Ask for Help –clearly understanding my limitations and adapting. This means calling a friend to drive to a doctors appointment or injections. This has given such wonderful time to talk and catch up…and removes the stress of a drive.
I have chosen to embrace this opportunity to live slowly, to adjust expectations, and to enjoy every moment I can with family and friends.
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