The most difficult challenge with Fibromyalgia, Chronic Pain Disorder, Neuralgia and the many other hidden conditions/illnesses that plague us, is the reality of how our lives change.
As I have written in the past, we do go through a mourning process….just like when a loved one dies. It was very helpful for me to review the 7 Steps of Grief…not that it makes it easier…it reinforced the fact that I was not “going crazy”.
I was SO unprepared for the realities that would come with my Fibro and other conditions. My Faith, family, friends, and medical team have been lifelines as I have traveled along this narrow and twisted path.
- Loss of Job — I could no longer physically or mentally function in a productive manner. (I have learned to take advantage of those moments when the “brain fog” lifts ever so slightly.)
- Pursuing Disability — This turned out to be very long, challenging, and stressful. In my case with Fibromyalgia and Neuralgia (without a known cause), it took over 30 months.
- Financial Implications — Such a long wait for Disability drained our reserves, and forced more dependence upon credit. Slowly and steadily we are turning the tide.
- Divorce — The reality of the rift that had developed. My son and I are on our own. This transition to being a single parent has been rough.
- Driving Assistance — I am so thankful for the friends I have who take joy in driving me to my injections when needed. So glad that these tend to be about 3-4 month intervals!
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