These pictures reflect the reason that we choose to join our families…our chronic conditions would prevent such moments.
Posts tagged ‘family support’
Beware of the steady focus on pain alone
For pain is not the only symptom we battle
Yet pain’s voice can be the loudest
Blaring over all others…
Or worse yet, swallowing them into itself
The headache, the abdominal cramps, the stabbing in the feet
Forced to feed into the great voice called Pain…
Those with softer voices yet carrying horrifying weapons of their own
Like bloating, muscle spasms, brain fog, blurry vision, burning sensations
Are carried away on pain’s current, and its need to be in the forefront…
We must remember each one of our conditions
For each one carries its own set of symptoms
Oftentimes overlapping thus covering up the condition responsible…
This masking and blurring, often made worse by our medications
Further weakens the voices the need to be heard and understood
To better assist us in dealing with what condition is truly at the front…
While remembering that each day, each moment
We have no control…none whatsoever…except how we deal with the voices
Attempting to listen harder so that we might better strike at the source…
The most difficult part of living with hidden illnesses/conditions like Fibromyalgia, Polyarthralgia, Chronic Pain Disorder, IBS, etc. is trying to describe our conditions to those close to us. I created the attached PDF to demonstrate how complex these conditions and their associated symptoms are…
If you have been reading my blogs lately, I have been writing about my pain pump and the journey to get off oral medications. (NOTE: I know that I will have some form of oral medication when all is said and done for flares not controlled by the pump.) I am making great success with my oral pain meds….am only using the short acting form during the day.
This past Friday, I started what will be the most difficult step…the process of getting off of Cymbalta! I say this because of my “cold turkey” experience with this powerful medication; and, I know that, even with my doctors involved with this, I will most likely deal with some of those nasty symptoms.
My doctor reduced my dose from 60 mg to 30 mg. I will be taking one pill per day for two weeks, then I will take one pill every other day for another two weeks. After that, I will be Cymbalta free. (At least, that is the plan!!!)
Today my body is a mess (legs stabbing/throbbing, upper right side is on burning, IBS-D is flaring –cramping and knots, extreme Fibro Fog, etc.) as it starts adjusting to a lower dose. Also doing my best to time my short acting pain med to offset the increased pain.
I understand that not everyone believes in God or in prayer; however, I am a strong believer. There have just been things that I have experienced that could be explained no other way.
We often ask our friends and family to pray for us. There is comfort in knowing that there are prayers being made on our behalf as we deal with crises, illnesses, chronic health conditions, sicknesses, surgeries, etc. Yet we often sell ourselves short on all of the prayers sources available to us.
Being Catholic, there are so many Saints that are able to pray for us. We do not pray to them; we ask them to pray for us…just like our friends and family. Further we can always ask those dearly departed family and friends to pray for us as well. Before you know it, there is a swell of prayers being raised to assist us in our time of need.
Of course, none of this takes place of our
personal prayers that are placed to our Heavenly Father through Jesus Christ. There is a calming influence as we “unload” confess wrong doings, express our concerns, pains, sadness…as well as all that we are thankful for.
As we express ourselves, we are provided the opportunity to send up a “thank you” for all of those that have said prayers for us…and ask for Heavenly Father’s blessings for them also!
Yesterday I went in for follow up with Pain Specialist. He did another increase since I am struggling by 5:00 pm…it takes all my energy to not take an extended release Nucynta. I really think we are getting close to having the usual, day-to-day pain dulled by the pain pump! A huge change for sure!
By no means does this mean that my Fibromyalgia, Polyarthralgia, Chronic Pain Disorder, Neuralgia, etc. are cured. The pain pump is doing its job…it is now helping with the pain! Yeah!!
I am still dealing with the other “joys” that come along with my hidden conditions. The best example being the fact that my legs have not been working for the past three days. My legs are heavy, like I have sunk into that gooey mud up to my knees…all my effort is required to stand and shuffle (worse than Zombie walk) to the restroom and back. For those of you with one or a combination of these hidden conditions/illnesses, you will understand!
I am so encouraged though! We have made improvement to one of the toughest aspects of Fibromialgia/Chronic Pain Disorder/etc.; and, that is taking the edge off the horrific, 24/7, 365 day pain!
The leaves shimmer
Moving up and down
Reflecting the brilliance of the sun…
Suddenly the branches join in
The smallest of movements
Grow into waves…
The hammock begins to sway
Gentle movements encouraged
By the unseen power of the wind…
My mind is drawn to a parallel
Of how our lives are influenced
By an Unseen Hand…
Some welcome the influence
Yearn to draw it closer
To strive to feel the push and pull…
Some are caught off guard
Stretched to the limit
To attempt to believe the unseen…
Still others are like stone
Unable to feel its touch
It goes unheeded as if not there…
The evidence is all around
It is in the smallest grain of sand
To the brightest star in the sky…
We need just close our eyes
And quiet our minds
To feel His presence…