Embracing life with chronic pain and illnesses.

Posts tagged ‘health’

Rain Brings…

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Rain brings an increase in temperatures

As it washes snow off the lava…

Rain brings the wind blowing the tree limbs

While cascading the water down the glass…

Rain brings the storm from the Northwest

As it batters the roof and races down gutters…

Rain brings increased ringing in my ears

Drowning out external sounds with its deafening pitch…

Rain brings the joint pain out of remission

Removing the relief of the higher elevation…

Rain brings elevated pain levels

As my body screams out for it to end…

 

A “New” Tomorrow

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As the sun sets

Majestic colors blanket the sky

The clouds seemingly ablaze

Before giving way to darkness…

So goes my battle with chronic conditions

The intense battle of the past several years

Is giving way to renewed hope

The darkness of unimaginable pain

Has lost its heavy grasp…

So goes my battle with chronic pain

The heartfelt prayers of others

In tandem with my own

Clearly demonstrate God’s hand

As I find myself filled with great anticipation…

So goes my battle with life changing illness

The precious gift of understanding

Provided by my medical team

Peace is granted in knowing

There are no answers…

So goes my battle with unknown conditions

The complexity of ailments

Magnified by extremely, overly sensitive systems

Prevent the use of most medications

The few options have been skillfully used…

So goes my battle with controlling symptoms

Addressing conditions that could be calmed

Along with carefully choreographed days

Fan the flame of hope restored

To embrace my “new” altered self…

So goes my battle with my new reality

 

 

 

 

Don’t Underestimate the “Tools” Provided

In the early morning hours while saying a prayer, images were brought to mind.  It was as if I was watching a slide show highlighting the path of chronic illness that I have been traveling.  So empowering and providing such a tremendous peace, that I must share!

With spot light in hand, God provided a glimpse…a “bird’s eye” view of my path.  It was like looking at a map.  I could see that with each boulder, rock slide, downed tree, or gaping hole there was a small, hand drawn box.  The boxes ranged in vicinity to the obstacles…sometimes it was next to the obstacle, sometimes it was a mile…yet with EACH impediment there was a box associated with it.

This personalized Isaiah 64:8 — “But now, O LORD, thou art our father; we are the clay, and thou our potter; and we all are the work of thy hand.”

These boxes were the many “tools” that have been given to me!  I am truly humbled and overwhelmed as I ponder this revelation…friendships, medications, Bible verses, change in attitude, phone calls, songs, surprise visits, text messages…

Some of these “tools” reappear to demonstrate how some are repurposed like my hernia belt that my husband had modified for me due to my Colostomy.  This belt is now providing some relief to the Sacroiliac joint that is inflamed as I await the appointment for a steroid injection to reduce symptoms.

As I await results from additional testing, I am thankful for the “tools” that God has granted to me, especially for my family, friends, and medical team.

Patience

This was the first year that our son was not excited about school. My only hope was that he would start his advanced math soon.

We had experienced our first full summer. This was the first summer in so years that I was healthy! I felt good. I had the opportunity to test myself and to test boundaries. I learned that I do not have limitations! (I have modifications!) I have been empowered.

Our son was able to begin his advanced math….he goes to the Middle School to start his day….then goes to the Elementary School for the balance of the day.

Yeah!!! His attitude and demeanor have improved……even though he is still hoping for more of a challenge….at least he has some positive distraction at school.

I now see that I get to help our son gain patience!

I was the frustrated perfectionist as a youngster….who is now blessed to be the mother of a perfectionist!

An “Ah-Ha Moment”

I must second….or third….or fourth comments I have seen posted here. I joined WordPress to share….I was hoping that I would be able to share what I have been going through…my illness, chronic pain, the procedures…the surgeries…..to help someone else. I wanted other families to benefit…..knowing how much my experience has impacted our son.

What I have found…is not just a way to express myself….my experiences to share……I have been so touched by those that read my blog….those that are following my blog. Their comments…their encouragement! It is truly amazing!

Our WP world is the perfect example of the positive that today’s technology can provide! I can post my thoughts…concerns for the day from the US…..and it can be read….throughout the United States, Canada, Germany, China, India….the world! We can reach out to each other! It does not matter where we are physically…..we are able to share and to connect WORLDWIDE!

This was my Ah-Ha Moment today in reading a response to my response! I am more connected…..I feel that I have expanded my friendship boundary through WP.

I know that God had a lesson to teach me……I can only hope that a part of that was this awakening. To know…that our lives touch…..even if we are more than 1,000 miles apart….or are a Nation or more apart.

We are brothers and sisters on this earth….walking paths to the best of our ability. I know that I can say that I have been touched by others “worlds” away. It is truly amazing….a huge blessing…how we through today’s technology can touch another’s life. To provide support….encouragement…..care…..to others walking similar (and yes, some dissimilar) paths.

I Just Have to Smile

As if working my first 6 hour per day week was not enough……I noticed that my right leg was not wanting to move properly. I was just contributing this to the swelling moving around….the healing that is still occurring. Then my husband said….isn’t that where your shingles act up?

Of course he had a point! I have also had many episodes of shingles (this would make 6)….and the right groin area is always the lead! I started my drug treatments for shingles to find that I am having relief! My leg is moving better….albeit by end of day today my leg was “lazy”…..but then so was my tummy! LOL

My entire body is tired. And as my husband put it….”Your body has been so overtaxed….so overwhelmed by all it has gone through……no wonder your shingles are acting up!”

Now I am forcing myself to sit and relax. I am in my easy chair…..catching up on email and, of course, blogging! It is so hard for me to sit idle when I feel that I should be on the up side of healing. Yet….I am being shown AGAIN that my body is unique….that I have to be cautious of all aspects of my health….that I must allow my body to fully recover….recoup from these ordeals!

Thankfully….my meds are helping. It is making a big difference in my right leg…..further acknowledging that my shingles were “visiting” again! Crazy! It also further reinforces that my sense of pain is so out of whack! I do not even register the discomfort. I just know something is wrong. Just so glad that I have a wonderful husband who can be so intuitive! So helpful!

I now as stated above…just have to smile! I am blessed! God continues to show me that! I am blessed with a wonderful, caring husband…..an awesome, caring son…..terrific friends and co-workers…..and fantastic family!

My body just makes me slow down……forces me to take time to enjoy the blessings that God has provided.

Insurance Update

Well….low and behold…my hiccup was actually caused by doctor’s staff.  Person responsible to place the order for the Lupron did not follow through.  Found this all out when going to appointment with my other specialist (colorectal specialist).  Talk about frustrating!

The positive side is my colorectal specialist is in full support of the Lupron injection.  He is hoping, like I am, that the injection along with the Neurontin will take care of the pain/discomfort I am in right now.

He said he will be in total support of removal of the ovaries and tumor if the injection is successful. It will mean that we have found the “culprit”!  Now I am anxiously awaiting the call to set up the appointment.  I will most certainly call my other doctor’s office Monday morning if I do not hear anything tomorrow!

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