Embracing life with chronic pain and illnesses.

Posts tagged ‘IBS-D’

Entering a New Reality

I was right when I thought this would be the hardest step in my new reality. I am referring to coming off of Cymbalta as part of clearing my body and having the pain pump take over.

We are very close to having the pump dialed in; this next adjustment may be the last one needed. I know the conversation with my pain specialist will be an interesting one as we discuss how my body is reacting.

Now for the truth of the reality of coming off of Cymbalta. I have described this as the most difficult step…at least I had anticipated it to be. Know that words cannot describe the intensity of the symptoms. The intensity of the brain fog is greatly amplified as well making thought and speech a huge frustration!  It is so hard to focus to interact with others…the wrong words are constantly used…don’t even think about driving.

Just a handful of the symptoms that have been exaggerated by the process: Brain Fog, burning, electric shocks, numbness, difficulty walking (legs do not obey), falling (or near-falling), nausea, abdominal cramping, IBS-D flaring, throbbing pains all over, stabbing sensations all over, tinnitus, light sensitivity, sound sensitivity, irritability, skin sensitivity to touch…

I have found that normal distractions or other tactics we use to help ignore symptoms do not work. It is truly a day-to-day battle to not lose my sanity! Even with all the questions we had asked and the additional research done on-line, I was truly not prepared for the amount of energy this process would take.

I am praying throughout the day and night for help make it through this step. There is light at the end of this I know. It will be such a relief in the months ahead having this medication cleared out of my body!

Thankfully today I have a break from the electric shocks and nausea…the balance of my symptoms are doing their best to make up for those that are not present!

Just remember, if you are considering coming off a medication like Cymbalta, take the time to research, to speak with your medical team, to share information with your spouse and children…then buckle up for a hellacious ride!

Update — Coming Off Cymbalta

Coming off Cymbalta even with doctor supervision and support has been a HUGE challenge!! Yet, it is nothing compared to the cold turkey symptoms, albeit there has been some overlap.

During the first two weeks with the reduced dosage, I have experienced electric shocks, intense brain fog, burning that is overwhelming, skin beyond overly sensitive–lightweight blouse causing stabbing sensations that reach to my core, and nausea…to name a few.  I have also had increased ringing in my ears making sleep a challenge!

I am now to the next step…which is one of the lower dose capsules every other day for two weeks. Should be interesting! LOL  Since there is so much going on in my body, I have continued to take the two short acting opioids.  It will definitely be an interesting conversation with the pain specialist this next Thursday!  My guess is we will up the dosage of the pump and then stay at that level for 3-4 weeks as we see how my body settles.

It is very exciting to think that I will be Cymbalta free by Labor Day weekend!

Now for the Difficult Step!

If you have been reading my blogs lately, I have been writing about my pain pump and the journey to get off oral medications.  (NOTE: I know that I will have some form of oral medication when all is said and done for flares not controlled by the pump.) I am making great success with my oral pain meds….am only using the short acting form during the day.

This past Friday, I started what will be the most difficult step…the process of getting off ofimages Cymbalta! I say this because of my “cold turkey” experience with this powerful medication; and, I know that, even with my doctors involved with this, I will most likely deal with some of those nasty symptoms.

My doctor reduced my dose from 60 mg to 30 mg.  I will be taking one pill per day for two weeks, then I will take one pill every other day for another two weeks.  After that, I will be Cymbalta free.  (At least, that is the plan!!!)

Today my body is a mess (legs stabbing/throbbing, upper right side is on burning, IBS-D is flaring –cramping and knots, extreme Fibro Fog, etc.) as it starts adjusting to a lower dose. Also doing my best to time my short acting pain med to offset the increased pain.

Prayer Warriors

I understand that not everyone believes in God or in prayer; however, I am a strong believer.  There have just been things that I have experienced that could be explained no other way.

We often ask our friends and family to pray for us.  There is comfort in knowing that saint-jude-1606173_1280there are prayers being made on our behalf as we deal with crises, illnesses, chronic health conditions, sicknesses, surgeries, etc.  Yet we often sell ourselves short on all of the prayers sources available to us.

Being Catholic, there are so many Saints that are able to pray for us.  We do not pray to them; we ask them to pray for us…just like our friends and family.  Further we can always ask those dearly departed family and friends to pray for us as well.  Before you know it, there is a swell of prayers being raised to assist us in our time of need.

praying-hands-2535750_1280Of course, none of this takes place of our
personal prayers that are placed to our Heavenly Father through Jesus Christ.  There is a calming influence as we “unload” confess wrong doings, express our concerns, pains, sadness…as well as all that we are thankful for.

As we express ourselves, we are provided the opportunity to send up a “thank you” for all of those that have said prayers for us…and ask for Heavenly Father’s blessings for them also!

Living “With” Fibromyalgia

Receiving the diagnosis of Fibromyalgia often takes a long time.  Every other illness/condition must be ruled out, or added to, our list of diagnoses.  After all, Fibro is rarely a lone diagnosis; it can be the primary or secondary, irregardless, the diagnosis of Fibro is a life changing event.

There are many ways that those with Fibro are treated…antidepressants, pain medications, alternative therapies (like acupuncture), chiropractic care, etc.  Some of us have extremely hypersensitive systems that greatly restrict what our medical team can prescribe or do for us.

Fibro does not manifest itself the same in each person; it can range from a slight inconvenience to overwhelming…meaning some can manage Fibro and continue with a normal life, whereas others are forced to quite jobs and become homebound.

There are 100 symptoms of Fibro.  Just as some people experience a handful of symptoms, others experience 25 – 50,  and still others will experience close to, if not reaching, all 100!  These symptoms do not hit all at once…the symptoms of Fibro can change on a daily, weekly, sometimes hourly basis.

When diagnosed with Fibro, we often fight our condition.  It is a challenge to learn how to deal with the symptoms, that can be overwhelming….fatigue, burning, numbness, tingling, brain fog, headache, stabbing, throbbing, cramping, muscle weakness, etc.

It also takes time to truly understand that Fibro is a condition that will not go away…there is no cure…the symptoms can improve and then flare at any given time.  Sometimes we can understand what we did to cause a flare, other times we can not make any sense of it.

We do eventually come to terms with our condition.  We learn to live with Fibro.  We accept the life changes it has forced us to make…we learn how to limit our activity and maximize rest in order to minimize our symptoms.  We see that we our definition of living has changed to adapt to our condition.

Week 11 with Pain Pump

Yesterday I went in for follow up with Pain Specialist.  He did another increase since I am struggling by 5:00 pm…it takes all my energy to not take an extended release Nucynta.  I really think we are getting close to having the usual, day-to-day pain dulled by the pain pump!  A huge change for sure!

By no means does this mean that my Fibromyalgia, Polyarthralgia, Chronic Pain Disorder, Neuralgia, etc. are cured.  The pain pump is doing its job…it is now helping with the pain!  Yeah!!

I am still dealing with the other “joys” that come along with my hidden conditions.  The best example being the fact that my legs have not been working for the past three days.  My legs are heavy, like I have sunk into that gooey mud up to my knees…all my effort is required to stand and shuffle (worse than Zombie walk) to the restroom and back.  For those of you with one or a combination of these hidden conditions/illnesses, you will understand!

I am so encouraged though!  We have made improvement to one of the toughest aspects of Fibromialgia/Chronic Pain Disorder/etc.; and, that is taking the edge off the horrific, 24/7, 365 day pain!

The Unseen Hand

IMG_7697The leaves shimmer

Moving up and down

Reflecting the brilliance of the sun…

Suddenly the branches join in

The smallest of movements

Grow into waves…

The hammock begins to sway

Gentle movements encouraged

By the unseen power of the wind…

My mind is drawn to a parallel

Of how our lives are influenced

By an Unseen Hand…

Some welcome the influence

Yearn to draw it closer

To strive to feel the push and pull…

Some are caught off guard

Stretched to the limit

To attempt to believe the unseen…

Still others are like stone

Unable to feel its touch

It goes unheeded as if not there…

The evidence is all around

It is in the smallest grain of sand

To the brightest star in the sky…

We need just close our eyes

And quiet our minds

To feel His presence…

 

Breathtaking 

Hidden Beauty 

The Glistening Ray

Looking out the window

I watch the leaves dance

In the gentle breeze…

Moving to and fro

The shades of color shift

From dark to light and back again…

The sun’s rays make the leaves glow

Reflecting the rays like colored mirrors

The radiance adding depth to the color…

The rays permeate the trees

Cascading through the leaves

To dissipate into the depths…

My eyes are drawn back

To those top most leaves

Dancing with the rays of the sun…

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