Coming off Cymbalta even with doctor supervision and support has been a HUGE challenge!! Yet, it is nothing compared to the cold turkey symptoms, albeit there has been some overlap.
During the first two weeks with the reduced dosage, I have experienced electric shocks, intense brain fog, burning that is overwhelming, skin beyond overly sensitive–lightweight blouse causing stabbing sensations that reach to my core, and nausea…to name a few. I have also had increased ringing in my ears making sleep a challenge!
I am now to the next step…which is one of the lower dose capsules every other day for two weeks. Should be interesting! LOL Since there is so much going on in my body, I have continued to take the two short acting opioids. It will definitely be an interesting conversation with the pain specialist this next Thursday! My guess is we will up the dosage of the pump and then stay at that level for 3-4 weeks as we see how my body settles.
It is very exciting to think that I will be Cymbalta free by Labor Day weekend!
Those of us with Fibromyalgia, Chronic Pain Disorder, Neuralgia and the like are dealt quite a handful of symptoms. The quantity of symptoms as well as the intensity vary from person to person. Although our conditions manifest differently, we can each relate having experienced the intense “Fibro Brain”…
Examples of “Fibro Brain” or “Brain Fog” that I have experienced:
- Forgetting what I was just told.
- Walking into a room, not remembering what I was doing.
- Forgetting to brush my teeth.
- Unable to find the dog brush, even though I thought for certain I put it away in the correct drawer.
- Walking to the bathroom and forgetting what I needed to do.
- Losing my phone…then finding I had placed it on the bed.
- Sitting down and realizing that I need to brush my teeth.
- Grabbing the lotion instead of the hair gel to put in my hair.
- Using the conditioner as shampoo.
- Using the shampoo as conditioner.
- Unable to focus for even a few minutes.
- Unable to watch a movie at a Theatre.
- Forgetting the note on my phone when at the doctor.
- Unable to find the batteries when staring right at them.
- Looking for my glasses (when they are on).
- Using the wrong name for items.
- Standing at the shower entrance and not knowing what to do next.
Of course, these are just a few of the many frustrating things that we deal with when we have Brain Fog. I find that the best thing to do is just smile or laugh…then do what you remember you needed to do!
It has been a long time…a very long time since I have given myself permission to remain in my pajamas for the day. Yet that is exactly what I did this morning!
The electric shocks continue to course through my body…my ears are ringing so loudly! Still! The oversensitivity of my chest is SO overwhelming! Words cannot express the pain that is permeating throughout my entire body…coursing through…causing waves of nausea.
Oh the joy of living with Fibromyalgia/Polyarthralgia/Chronic Pain Disorder/and the like!
I am doing what is SO difficult for each of us…I am giving myself a break! My symptoms are in control now…however, this is temporary! It may be tomorrow…the day after…or next week…it will come though!
I will awake one day soon with the notable absence of these terrifying shocks…the incredible “out of body” feeling…the deafening, high pitched screaming in my ears…
My only focus today…is rest…do not feel obligated…enjoy the comfort of pajamas…of a warm fire on a cold day…
From out of nowhere
So hard to describe
The zapping…the tingling…
The overwhelming inability
To have any control…
As if I am connected
Directly to a power outlet…
Attempts to close my eyes
Increase the disorientation…
My head is reeling
It is spinning as if not connected…
Resting as best as possible
Not knowing how long…
Will these electric shocks
Go away sooner…or later?
I thought I had experienced the gamut of symptoms that Fibromyalgia and Polyarthralgia could throw at me! It has proven me wrong!!!!
For the past couple of days, I have had the strangest sensations! Like little electric shocks followed by a feeling of being completely unbalanced.
So…being the inquisitive type like I am…I began reading through as many of the University reports possible regarding these odd prickly/electric like ripples……
I found the following:
“The feelings and caused causes of fibromyalgia electric shock sensations can be described as follows:
Feels like an electric shock traveling through one’s body, sometimes accompanied by a “falling sensation”.
Feels like pins and needles but more painful, alarming and pulsating.
Jerks the joints of arms, legs, fingers and toes
Can come on at any time and is like a flash of light followed by electric shock tingling.
Feels like “creepy crawlies” or ants crawling under one’s skin and causes the skin to tighten and jerk.
Feelings of twitching scalp along with facial twitching of mouth, eyes, and eyebrows.”
In further reading, I find that this “Fibromyalgia Electric Shock Sensation” can happen anytime, anywhere, intermittently…..that it can last for days, weeks or sometimes months!
Yikes! It is SO bizarre! Like a current that is rushing, randomly through the body…..and that “falling sensation” is scary!
I am thankful that I have undergone so many tests in the recent months to know that my “body” checks out as “normal”….I am thankful that this is just one more symptom of my condition! (No…it does not take the scariness away….it just helps me to provide some positive self talk as I deal with this craziness!)